AMIA 2012 Year in Review Files and Presentation

This page contains information about the 2012 Clinical Research Informatics (CRI) Year-In-Review session that I conducted at the conclusion of the 2012 AMIA Joint Summits on Translational Science. Background information, Files, and Bibliographic details are listed below, as is the slide presentation.


Background:

As with the other sessions, the items presented this year are ultimately selected by the presenter using an informal process, do not represent a systematic or comprehensive review, and certainly do not represent an organizational statement nor position of AMIA. I hope you find this useful. Below is information on this year’s session.

Details of search methodology:
  • Initial search by MESH terms: ("Biomedical Research"[Mesh] NOT "Genetic Research"[Mesh]) NOT "Translational Research"[Mesh]) AND "Informatics"[Mesh] AND "2011/01/01"[PDat] : "2012/02/01"[Pdat]
  • Additional relevant articles through: Recommendations from colleagues; Other keyword searches using terms like: Clinical Trials, Clinical Research, Informatics, Translational, Data Warehouse, Recruitment
  • Note that if they were from early 2011 but were already presented last year, I did not select them to avoid repetition.

Based on the above methodology, 104 CRI-relevant articles emerged, 77 were selected as semi-finalists, and from those I finally selected the following 33 articles as notable contributions to the CRI literature over the past 1+ years. These 33 (as well as 3 additional ones at the bottom) are the ones that I discussed during the presentation. Links to the main (33+3) and extended (77) bibliographies are provided via links below.


Main Bibliography - 2012 CRI Year-in-Review (Organized by Category):

Clinical Data Re-Use for Research
  1. Carroll RJ, Thompson WK, Eyler AE, Mandelin AM, Cai T, Zink RM, et al. Portability of an algorithm to identify rheumatoid arthritis in electronic health records. J Am Med Inform Assoc. 2012 Feb. 28.  
  2. Parsons A, McCullough C, Wang J, Shih S. Validity of electronic health record-derived quality measurement for performance monitoring. J Am Med Inform Assoc. 2012 Feb. 9.  
  3. Wright A, Pang J, Feblowitz JC, Maloney FL, Wilcox AR, McLoughlin KS, et al. Improving completeness of electronic problem lists through clinical decision support: a randomized, controlled trial. J Am Med Inform Assoc. 2012 Jan. 3.  
  4. Herzberg S, Rahbar K, Stegger L, Schafers M, Dugas M. Concept and implementation of a computer-based reminder system to increase completeness in clinical documentation. Int J Med Inform. 2011th ed. 2011 May;80(5):351–358.  
  5. Dregan A, Toschke MA, Wolfe CD, Rudd A, Ashworth M, Gulliford MC. Utility of electronic patient records in primary care for stroke secondary prevention trials. BMC public health. 2011th ed. 2011;11:86.  
  6. Kiragga AN, Castelnuovo B, Schaefer P, Muwonge T, Easterbrook PJ. Quality of data collection in a large HIV observational clinic database in sub-Saharan Africa: implications for clinical research and audit of care. Journal of the International AIDS Society. 2011th ed. 2011;14:3.  
  7. Pathak J, Wang J, Kashyap S, Basford M, Li R, Masys DR, et al. Mapping clinical phenotype data elements to standardized metadata repositories and controlled terminologies: the eMERGE Network experience. J Am Med Inform Assoc. 2011th ed. 2011 Jul-Aug;18(4):376–386.  
  8. Malin B, Benitez K, Masys D. Never too old for anonymity: a statistical standard for demographic data sharing via the HIPAA Privacy Rule. J Am Med Inform Assoc. 2010th ed. 2011 Jan-Feb;18(1):3–10.

Data/Knowledge Management and Discovery:
  1. Kohane IS, Churchill SE, Murphy SN. A translational engine at the national scale: informatics for integrating biology and the bedside. J Am Med Inform Assoc. 2011th ed. 2012 Mar-Apr;19(2):181–185.  
  2. Tenenbaum JD, Whetzel PL, Anderson K, Borromeo CD, Dinov ID, Gabriel D, et al. The Biomedical Resource Ontology (BRO) to enable resource discovery in clinical and translational research. J Biomed Inform. 2010th ed. 2011 Feb.;44(1):137–145.  
  3. Tasneem A, Aberle L, Ananth H, Chakraborty S, Chiswell K, McCourt BJ, et al. The Database for Aggregate Analysis of ClinicalTrials.gov (AACT) and Subsequent Regrouping by Clinical Specialty.
  4. Gagnier JJ, editor. PLoS One. 2012 Mar. 16;7(3):e33677. Payne PRO, Borlawsky TB, Lele O, James S, Greaves AW. The TOKEn project: knowledge synthesis for in silico science. J Am Med Inform Assoc. 2011 Dec.;18 Suppl 1:i125–31.  
  5. Richesson RL, Nadkarni P. Data standards for clinical research data collection forms: current status and challenges. J Am Med Inform Assoc. 2011 Apr. 12;18(3):341–346.  
  6. Kong YM, Dahlke C, Xiang Q, Qian Y, Karp D, Scheuermann RH. Toward an ontology-based framework for clinical research databases. J Biomed Inform. 2010th ed. 2011 Feb.;44(1):48–58.  
  7. Shaw M, Detwiler LT, Noy N, Brinkley J, Suciu D. vSPARQL: a view definition language for the semantic web. J Biomed Inform. 2010th ed. 2011 Feb.;44(1):102–117. 

Researcher Support & Infrastructure: 
  1. Borlawsky TB, Lele O, Jensen D, Hood NE, Wewers ME. Enabling distributed electronic research data collection for a rural Appalachian tobacco cessation study. J Am Med Inform Assoc. 2011 Dec.;18 Suppl 1:i140–3.  
  2. Murphy SN, Dubey A, Embi PJ, Harris PA, Richter BG, Turisco F, et al. Current State of Information Technologies for the Clinical Research Enterprise across Academic Medical Centers.  
  3. Nagarajan R, Lowery CL, Hogan WR. Temporal evolution of biomedical research grant collaborations across multiple scales--a CTSA baseline study. AMIA Annu Symp Proc. 2011;2011:987–993.  
  4. Helmer KG, Ambite JL, Ames J, Ananthakrishnan R, Burns G, Chervenak AL, et al. Enabling collaborative research using the Biomedical Informatics Research Network (BIRN). J Am Med Inform Assoc. 2011th ed. 2011 Jul-Aug;18(4):416–422.  
  5. Brandt DS, Bosch M, Bayless M, Sinkey CA, Bodeker K, Sprenger K, et al. A CTSA-sponsored program for clinical research coordination: networking, education, and mentoring. Clin Transl Sci. 2011th ed. 2011 Feb.;4(1):42–47.

Participant Recruitment:
  1. Friedlander JA, Loeben GS, Finnegan PK, Puma AE, Zhang X, de Zoeten EF, et al. A novel method to enhance informed consent: a prospective and randomised trial of form-based versus electronic assisted informed consent in paediatric endoscopy. Journal of medical ethics. 2011 Apr.;37(4):194–200.  
  2. Harris PA, Scott KW, Lebo L, Hassan N, Lightner C, Pulley J. ResearchMatch: A National Registry to Recruit Volunteers for Clinical Research. Academic Medicine. 2012 Jan.;87(1):66–73.  
  3. Herasevich V, Pieper MS, Pulido J, Gajic O. Enrollment into a time sensitive clinical study in the critical care setting: results from computerized septic shock sniffer implementation. J Am Med Inform Assoc. 2011 Aug. 16;18(5):639–644.  
  4. Ferranti JM, Gilbert W, McCall J, Shang H, Barros T, Horvath MM. The design and implementation of an open-source, data-driven cohort recruitment system: the Duke Integrated Subject Cohort and Enrollment Research Network (DISCERN). J Am Med Inform Assoc. 2011 Sep. 23.  
  5. Anderson N, Abend A, Mandel A, Geraghty E, Gabriel D, Wynden R, et al. Implementation of a deidentified federated data network for population-based cohort discovery. J Am Med Inform Assoc. 2011 Aug. 26.   
  6. Weng C, Wu X, Luo Z, Boland MR, Theodoratos D, Johnson SB. EliXR: an approach to eligibility criteria extraction and representation. J Am Med Inform Assoc. 2011 Dec. 16;18(Suppl 1):i116–i124. 

Consumer/Patient Engagement in CRI:
  1. Tweet MS, Gulati R, Aase LA, Hayes SN. Spontaneous Coronary Artery Dissection: A Disease-Specific, Social Networking Community-Initiated Study. Mayo Clinic Proceedings. 2011 Sep.;86(9):845–850.  
  2. Hall A, Rode M, Pagnoux C, Yacyshyn E. Patient-Driven On-Line Survey on Granulomatosis with Polyangiitis. Arthritis Rheum. 2011 Nov. 4;63(Suppl 10):2371.  
  3. Bellamy N, Wilson C, Hendrikz J, Whitehouse SL, Patel B, Dennison S, et al. Osteoarthritis Index delivered by mobile phone (m-WOMAC) is valid, reliable, and responsive. J Clin Epidemiol. 2010th ed. 2011 Feb.;64(2):182–190.

Policy and Fiscal Relevant to CRI:
  1. DeMets DL, Califf RM. A historical perspective on clinical trials innovation and leadership: where have the academics gone? JAMA. 2011 Feb. 16;305(7):713–714. 
  2. Embi PJ, Tsevat J. Commentary: the relative research unit: providing incentives for clinician participation in research activities. Academic medicine : journal of the Association of American Medical Colleges. 2012 Jan.;87(1):11–14. 
  3. Cantor MN. Translational informatics: an industry perspective. J Am Med Inform Assoc. 2012 Feb.;19(2):153–155.
  4. Collins FS. Reengineering translational science: the time is right. Sci Transl Med. 2011 Jul. 6;3(90):90cm17. 

Other articles mentioned under notable events:
  1. Lorenzi NM. AMIA's realigned strategic plan. J Am Med Inform Assoc. 2011 Feb.;18(2):203–208.  
  2. Payne PRO, Embi PJ, Kahn MG. Selected papers from the 2011 Summit on Clinical Research Informatics. J Biomed Inform. 2011 Dec.;44 Suppl 1:S54–5.  
  3. Ohno-Machado L. Innovative approaches to support patient decision making, improve safety, and enable large-scale clinical research. J Am Med Inform Assoc. 2011 Dec. 16;18(Suppl 1):i1–i1. 

Presentation


Files:


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